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  1. harrietW

    4 Days post op Bloody Hell / mire updates to come when l am up to it !!!

    July 9, 2019 Open Heart double valve replacement aortic & mitral bovine tricuspid my own tissue tissue. Approx 160 transfusion 11 since Tuesdays. Stag 3 blockage A/F possible pacemaker if it doesn't even out by July 16 are in place. Very sm lung capacity. Possibly reintabation...
  2. harrietW

    Update for -Now or Never Redo

    Hello friends Thank you for all the comments and messages on my last post and for the Thoughts and Prayers on the passing of my mom 2 mtg ago today ... I miss her terribly! After my last post l checked into hospital where l spent 2 weeks before they transported me to Calgary whee l remain now...
  3. harrietW

    Guess its now or never .. From Mechanical to Bovine

    Hello Freinds I'm kind of hit and miss around here. But here's a recap .. Jan 5 /16 OHS Valve Replacement Aortic Mech Valve and Mitral Valve Prosthetic Ring . . Immediately after surgery Internal bleeding started exasperated by Warfarin. To date approx 140 blood transfusions. (Angiodispla)...
  4. harrietW

    Up- date / Re-op has anyone gone from mech to tissue

    Hello friends update on second opinion new cardiologists at the request of my surgeon recap possible mechanical aortic removal and tissue valves for aortic mitral ( existing repair ring prosthetic) and now tricuspid Reason continual bleeding due to angiodysplasia which was diagnosed after open...
  5. harrietW

    Re-op has anyone home from mech to tissue

    Has anyone gone from mechanical to tissue Hello old friends it's been awhile. Sorry re spell check I've been kind of busy since the last time l posted .. Getting blood lots of Blood .. Since my Jan 5 /16 aortic valve replacement and mitral valve repair so much has taken place yet nothing at...
  6. harrietW

    Say it isn't so .. Hello friends !

    Hello friends After a long absence from the forum lm back. Almost a year has past and things couldn't be any worse. I am sure l will check in and out as time goes on although l will admit that after the last year or so and after my Jan 5th OHS and all the event that followed l really just...
  7. harrietW

    Say it isn't so .. Hello friends !

    Hello friends After a long absence from the forum lm back. Almost a year has past and things couldn't be any worse. I am sure l will check in and out as time goes on although l will admit that after the last year or so and after my Jan 5th OHS and all the event that followed l really just...
  8. harrietW

    Say it isn't so .. Hello friends !

    Hello friends After a long absence from the forum lm back. Almost a year has past and things couldn't be any worse. I am sure l will check in and out as time goes on although l will admit that after the last year or so and after my Jan 5th OHS and all the event that followed l really just wanted...
  9. harrietW

    Quick update Hello friends.

    Hello everyone l am terrible at keeping up with things these days. But a quick update l copied to post after l had a couple of lovelies checking up on me. How are you ? Thank you for thinking of me Xx Gosh l just can keep up with things these days. Although l am stable and back on warfrin plus...
  10. harrietW

    Y'all aren't going to belive it. Did someone say leak 😡

    So friends l went to Calgary to see a doc about a heart 😕 My knewly repaired mitral valves gotta leak. Yip in regurgitation and you heard it here first. Sigh it just gets better and better. Although this was not the entire focus on my follow up after 11.5 weeks as you know l've been in...
  11. harrietW

    Angiodysplasia / nightmare update

    Hello friends and here is an update to this nightmare Angiodysplasia found in Aortic valve patients although it is a mystery it has become my biggest nightmare. So here's for the update as some of you do you know I have been bleeding internally now for 3 months since open heart surgery. And in...
  12. harrietW

    Angiodysplasia / Heyde syndrome

    Angiodysplasia / 1) in the jejunum 2) mid sm intestines I couldn't be more upset. . Waiting for surgeon to come and see me as we speak for jejunum procedure . The are making to send me via ambulance to Calgary South Health Campas for a DBE .. Colonoscopy Ballon scope of some sort very invasive...
  13. harrietW

    Surviving the nightmare ✌

    Although we have yet not figured out the source of internal bleeding and after a dozen tests and procedures along with 3 transfusions the bleeding seems to have subsided or lessend and my blood count is leveled off finally. I have another procedure tomorrow that hopefully will give us the...
  14. harrietW

    Almost empty .. down a few pints !

    Hemoglobin 50 At almost 5.5 weeks post Sergey l had someone take me to hospital to find l was down a few pints. I am on my second blood transfusion in as many day. Baffled. . . This has obviously cause me many problems in my post op recovery. No answers no reason determined yet. They intend to...
  15. harrietW

    Observation not my imagination

    I am 5 weeks post surgery and will say not recovering very well or quick enough pain level brought me to tears yesterday but more than that l notice about two week post op while still in hospital while brushing my teeth one day how grey my teeth and smile looked. Now natural my teeth have always...
  16. harrietW

    The struggle is real. . . discharged and second guessing myself.

    Hello friends . I am home .. sorta! at my sons for a few day after discharge yesterday. I am angry sad and second guessing my desision that l went with Open Heart Surgery and even more so mechanical valve replacement . I cannot believe the amount of meds that have now been attached to my very...
  17. harrietW

    plural effusion = plural frustion

    Frustration lol Completely frustraTed heading into week 2 post op . Weak frustrated not even sure l will have the energy for this post update. Waited all day long today to have my lungs drain and then nothing. Pain pressure and shortness of breath seems to be my fate again tonight !!! Praying...
  18. harrietW

    And the count down begins! !

    And l don't mean New Years or do l ! ? Only just a few sleeps like 5 more sleeps and after 3 yrs of waiting will all be over and a miracle of miracles takes place. I am in aww and denial at the same time as l head into the New Year with the possibility of many many more to come. When l saw...
  19. harrietW

    could literally be days away from open heart

    Well friends January 5th 2016 it is !! Doesn't even seem real .. sort of. All the sudden after over 2.5 yrs lm told to go for blood for transfusion next week and be ready to go for Jan 5th. . But she will call and confirm that next week. Eeeek wow l was a bit overwhelmed tonight making a last...
  20. harrietW

    epidural or not to epidural is the question?

    Last week while at my pre op administration and whilst in discussions with the Anesthesiologist The option to have an epidural was mentioned. Reasons for and against or pros n cons were discussed the biggest pro was faster delivery of meds but of also being weaned off medication more...
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