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  1. Pete81

    How has it been since your Valve replacement?

    Next month will be 4 years for me and my 25mm St Jude Regent mechanical AVR (+ CABG, they were there anyway) which went in due to endocarditis of my poor bicuspid valve (had no idea I had one until the doc told me in A&E) at age 35. After clinic cardiac rehab I spent some time with a personal...
  2. Pete81

    19 Year Anniversary

    Congratulations Caroline! What type of valve has been doing so well for you all those years?
  3. Pete81

    Eight and still ticking on !

    I really like the sound of that, eating fresh seasonal vegetables, cheese, wine, France, wauw 😋
  4. Pete81

    Ferro and INR

    I was really quite anemic after my surgery. So I took Iron supplements for quite some time to. Iron went up rather slowly so kept on taking them for a bit longer than two months, never a problem with my INR. Can’t remember if it was written on the box but I think taking them in the morning...
  5. Pete81

    Foldax valve trials

    I think ‘failure’ in the context of valves can be interpreted broader than just things breaking of. I would be surprised if mechanical strength hasn’t already been tested in vitro using test setups putting these new valves in overdrive. Failure by calcification or other forms of smaller but...
  6. Pete81

    Ibuprofen okay with new tissue valve?

    Hi BB25, many heart patients, recipients of mechanical valves in particular take warfarin or a derivative thereof as an anticoagulant. The combination of those with NSAIDs such as ibuprofen is known to increase Risk for gastric bleeding. aspirine is in principle also irritating the stomach...
  7. Pete81

    29 years

    Congratulations, good stuff; inspirational to read these things are possible!
  8. Pete81

    New to forum

    Hi Adam, good to have you here! This is the right place to be and definitely also the right time to ask questions (also to your consultants btw, ask questions, everything you are worried and concerned about) I had my mechanical valve at 35 (4 years ago) I was a CAMRA member at the time, so you...
  9. Pete81

    New Member Early 30s BAV, Aortic Root Dilation, Wondering about Woodworking

    I don’t know Dan if you have youngsters (yet) but I was thinking the other day, and I don’t know exactly in lbs, but my 4yo daughter is ~23kg now and still she want me to carry her up the stairs bringing her to bed or throw her high up in the air. the thought of me having to say no to that and...
  10. Pete81

    Coag-Sense versus CoaguChek xs and labs

    ProTimeNow, you sure have done some research....Interesting how, from what I get from your description, the CoagSense seems to contain a Tiny mechanical part, I would argue that the electrochemical solution of Coagusense would be more robust but that’s only slightly educated and more of a gut...
  11. Pete81

    Coag-Sense versus CoaguChek xs and labs

    Big differences indeed. I just had my Coagucheck XS check last Thursday. Of course when I go to clinic for this (2x a year) I test against another, clinic calibrated, XS. it was spot on so I would say the XSs can be precise but because of the fact there was no lab test I have no idea about the...
  12. Pete81

    Coag-Sense versus CoaguChek xs and labs

    This is so incredibly difficult, I hear you say “significant“ and “(in)accurate” which are terms used in statistics, I think it is very difficult to try and say anything statistically meaningful about the differences you record that could then be used to correctly describe the performance of...
  13. Pete81

    New Member Early 30s BAV, Aortic Root Dilation, Wondering about Woodworking

    Hi Dan, thanks for sharing you story. I can relate to what you’re saying, I have to say that even after almost 4 yrs I still struggle with the impact my surgery had on me. The realisation of something being seriously wrong with my heart/health made me also want to control every aspect of life...
  14. Pete81

    Paravalvular leak

    Thanks for Sharing your thoughts on this. I have to say I feel extremely lucky with the expertise center I am a patient and from where I am being monitored. I have a lot of confidence in my cardiologist but what you are saying does also make sense to me. It does make me wonder though if a...
  15. Pete81

    Paravalvular leak

    Thanks for sharing, I do hope you will be able to get your check-up soon and you’re alright. As far as sports, I am taking it easy, I run and that’s a great way to let things go.
  16. Pete81

    Foldax valve trials

    it seems that Foldax is much further with their valve as they are already testing in vivo but today I saw this post on linked-in from the university of Cambridge on their PoliValve which is also a polymer one, thought you might find this an interesting read: New artificial heart valve could...
  17. Pete81

    Paravalvular leak

    Thanks Pellicle 🙂 I have annual check-ups now but had a few extra ones after the first observations. Had lots of things ruled out such as endocarditis by PET scanning etc. Things seem stable now of which I hope it stays like that, and won’t, as you mentioned, progress but maybe it is inevitable...
  18. Pete81

    Paravalvular leak

    Something that has been on my mind a lot is the fact that since about a year or so I know that there’s a gradient over my St Jude 25mm that went in about four years ago. I had my surgery done in the UK but have since relocated to the Netherlands. This is where the consultant found that a)...
  19. Pete81

    What does 'tired' feel like?

    That’s a deep but interesting question, especially when you link it to an example like yours. You describe that you sometimes consider things to be normal when they really aren’t because comparing experiences between people is difficult. Are you underperforming because your level of...
  20. Pete81

    MV Re-repair and physical strength

    Hi Iggy, Sounds familiar, at least from the trying to go back to your usual everyday activities by building up an excercise routine. I had AVR at 35 and what you describe for running and your heart rate going up, same thing for me at the time. Clinic cardiac rehab gave me first confidence, this...
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