Recent content by Rachel

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  1. Rachel

    "I'm too scared to lose you."

    When I had my surgery, I clearly remember being so very grateful that I was the patient and not the caregiver! I was more concerned about my husband than I was about myself, and he never said that he was concerned about me, but I just know that it has got to be tough waiting around not knowing...
  2. Rachel

    What were the signs that lead you to OHS?

    I had heart palpitations almost every night beginning in January of 2011 – didn’t think much about it since my 42 year old brother had just been killed in a bike accident six months prior so I was grieving and I thought I was stressed. A couple weeks later I blacked out while driving my car...
  3. Rachel

    loss of appetite

    For three days right after surgery, food didn't taste good.....but then..... I ate.....and ate..... and ate!!! For whatever reason it was super hard for me to gain weight after surgery and so eating was a ton of fun....I think the surgery took its toll on me and I needed all the food and sleep I...
  4. Rachel

    Soon flying out

    Thinking of you Catie - all the best!!!
  5. Rachel

    Hi, New Memberb

    WOW - Just saw your video, thanks so much for posting that, I love it! You are so strong and such a beautiful person, I can tell you live your life to the fullest. I don't post here as often as I'd like, but I'm really glad I caught your post and I'm really happy you joined and got connected to...
  6. Rachel

    How long till your next follow up?

    Congrats on a great echo report!!!! ​ I go in every year for an echo and every other year for a MRI with contrast dye....and I'm super comfortable with that...then again I have a tissue valve and the doctor's visits keep me humble and grounded to my reality. Failure is less of an option with a...
  7. Rachel

    Menopause and warfarin

    I'm in menopause - I'm 51 and I've been dealing with all sorts of menopausal related symptoms from dry everything to mood swings to insomnia due to hot flashes for almost a full year now - but I will not take HRT - I have a tissue valve and am not on any anticoagulant therapies - I have just...
  8. Rachel

    Activity Level After Surgery

    I will second this plan - GREAT plan - worked for me too!
  9. Rachel

    Found out today Ascending Aortic Aneurysm is larger---feeling confused and scared!

    Hi HopefulHeart – I know how scary this is - but it sounds like you're doing a great job being proactive. This was my experience I’m 5’4 and 117lbs My aortic aneurysm was 5.2cm with BAV First cardiologist I saw told me he wouldn’t recommend anything for me for the next...
  10. Rachel

    completing health history forms

    I agree with both of you - I think that if your heart and arteries are healthy then you don't have heart disease. I don't have heart disease, I have a birth defect which required surgery to fix. So unless I start having symptoms of heart disease I'll continue to leave the heart disease boxes...
  11. Rachel

    Funny Hallucination Stories

    This is great! My first day home after surgery I woke up in the middle of the night and thought I heard a comet hitting the Earth…......I swore it was a comet…......and it was going to kill us all –HAHAHA!!! Then I thought – “oh great, I survived open heart...
  12. Rachel

    Time to come out of the shadows...

    Time to come out of the shadows….sounds like a good place for me to jump in – I’ve been a member here for several years but I don’t post much, however seeing that your situation seems to be similar to mine I’ll share my experiences – I found out about my bicuspid...
  13. Rachel

    ocular migraines increasing

    I get these - zig/zaging flashing lights, starting with a blind spot in the center of my vision, eventually dispersing out of my visual field after 20-30 minutes and no headache.....started in my early 30's - freaked me out the first couple times - thought I was going blind!!!! Mine were worse...
  14. Rachel

    Great Post-Op Appointment

    Congrats!!! That's great news!
  15. Rachel

    Having surgery in 4 Days for an Ascending Aortic Aneurysm

    Also thinking of you - I also had an aneurysm - mine was 5.2cm when detected - yup very scary. So glad you're having your surgery - I too hope all went well.
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