Recent content by Nocturne

Lp(a) is genetic and doesn’t budge for much. Mine, you may remember, is 13 times normal, triple the “extremely high risk” level. Yeah, meds that lower it are “right around the corner” - just like they have been for the last decade or so. I’ll believe it when I’m on them. I was, for what it’s...

Pellicle can be a fountain of toxic positivity. Try not to let him get to you. Your anger, sadness, and fear are valid. Good luck to you. I’m sorry you’re dealing with this.

If you are coming here with a normal tricuspid valve and CALCIFIC DEGENERATIVE aortic valve stenosis, don’t let anyone here dump on you for having “done it to yourself”, as happened to me. High Lp(a) is determined by genetics and some people have shockingly high levels of they have more than...

Lp(a) is a CAUSAL factor for calcific AVS. Mine is about 13 times normal due to having a pair of mutant alleles in my genome at rs10455872. Do you know your Lp(a)? If you have AVS, then you should, because high Lp(a) is also causal for coronary artery disease and treatments to lower it should...

Yes, and high Lp(a) typically accellerates the progression of AVS. I’d get it checked.

Absolutely. And yes, a calcified tricuspid valve at age 53 seems like a red flag for high Lp(a) to me. Have you asked your doctor to check your Lp(a) levels yet? It is rare for a doctor to check them unprompted, because historically there has been nothing they can really do to lower them (they...

https://jamanetwork.com/journals/jamacardiology/article-abstract/2715105 Original publication in JAMA. I just emailed my cardiologist asking if this new evidence could help get me on Repatha, but I already know the answer will be a look of mild irritation and a repeat assertion that the drug...

Just something for those unfortunate people who have AVS due to extremely high Lp(a) levels and end up coming here for support and advice...

Not sure if you all have seen this yet - looks like good news: https://www.practiceupdate.com/content/clinical-and-echocardiographic-outcomes-similar-after-surgical-redo-mitral-valve-replacement-and-transcatheter-mitral-valve-in-valve-therapy/69991/37/2/1

https://www.businesswire.com/news/ho...2xq-s.facebook “”Convincing evidence has emerged from pathophysiological, epidemiological, and genetic studies that Lp(a) is causally related to both CVD, which includes myocardial infarction, stroke, peripheral arterial disease, and heart failure, and...

In response to the Lipoprotein(a) Foundation’s 2017 application, two International Classification of Diseases (ICD) 10 codes have now been approved by the CDC for elevated lipoprotein(a). These ICD-10 Diagnosis codes will help identify the global population at risk for early heart attacks...

The actual link would be here: https://www.facebook.com/413547805393419/posts/1794638010617718/

One thing that seems absolutely true, and that this forum has been good for, is realizing that AVR doesn't mean being crippled for life. There is nothing stopping most people with an artificial valve from doing whatever physical things they want to do.

Wait, wait... So people in the USA can't get this thing? After it's been around for a quarter of a century? I wonder what part of the swamp caused that - they didn't genuflect before the FDA quickly enough, or line the right pockets? Jesus.

If memory serves, you are paying about $7000 per year - about half what I’’d have to. American docs won’t even prescribe the stuff unless you have FH and have had a heart attack. Edit: You’re in the UK, right? It’s UNDER $7000 there...