Recent content by JonML

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  1. J

    Pfizer and Tikosyn?

    I've been able to get my Tikosyn from Pfizer (income reason) and just sent in a new form thru my doctor. Got a letter from Pfizer saying they can't do it anymore till mid 2021. Have to call the doctor to see if they are suspending Tikosyn or if the program isn't something they aren't doing...
  2. J

    Younger aortic valve replacement patient experience

    The first valve for the aorta in 1976 (...boy am I that old already?) was a Lillehei-Kaster aortic valve prosthesis and this was what was implanted. My understanding was the St. Jude valve was just coming out at the time. Basically the Lillehei-Kaster looks like a ring with 2 "rattlesnake fangs"...
  3. J

    Younger aortic valve replacement patient experience

    Had my first done at 16 (mechanical) and never seemed to limit me. Played softball, did the QUAD locally for several years (swimming/crosscountry skiing, biking and running over several months). Whatever my body felt I could do. Have had 2 others over the years (after 14 years valve developed...
  4. J

    DO MACHANICAL VALVES FAIL

    That's why at doctors appontments they listen to the heart for crisp closing sounds. 1976 had a Lillehi-Kastor(?) aortic valve put in (what I was told was they were just coming out with the St. Jude valve). Basically it was a disc that would lift during pumping and hit 2 "fangs"...looked like...
  5. J

    Anyone have a valve replacement AND a pacemaker?

    Yep. Aortic valve replaced with a lilihi-castor(?) valve in 1979 (apparently St. Jude was just coming out)then replaced in 1990 then a mitral valve in 2000 which at the time they had trouble and corrected it because they needed another drain tube as the blood had pooled around my heart (both are...
  6. J

    How to lower inr

    Okay, maybe this was hinted at. Listen to what your doctor wants done and question if have any questions. Asking others isn't the same as asking the doctor. My inr range is 2.5-3.5. The doctor had me hold the coumadin for 2 days and then they did the test on Monday before I went it to have the...
  7. J

    Mechanical Valve - clicking

    I have both an aortic and mitral St. Judes valves. The aortic was replaced in 1990 (originally had the Lelehi-Castor(?) valve put in in 1976...just as the St. Judes was coming out... but it developed growth of some type and wouldn't close all the way). The mitral was replaced in 2000. I can hear...
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