Recent content by ilapreynolds

Ah! That makes sense. We do a lot for the opportunity to have kids.

Thank you for finding this. I really appreciate it. Yes. This confirms what I thought.... that it's very risky for me to be on anti-coagulants. I did know that all valve surgeries require it for some time, which concerns me. I am thinking the less time on anticoagulants the better. When I...

Yes. Hearing other's stories is very helpful. Thank you. I'm glad that your surgeries didn't seem to feel that way for you. Thanks for the article. Interestingly, I am on a lot of these supplements already. With EDS, it seems that the supplements only help as long as you take them. When you...

Thank you. By greater risk of ongoing need for surgery, I am assuming that you mean some kind of heart surgery. It doesn't increase the risk of other surgeries, does it? Yes. We are lucky for the advancements in medicine that we have.

Thank you.

Wow! Thank you for sharing her story. That gives me a lot to think about. So, if the first surgery she had had mechanical valves placed instead, would that have been the only surgery needed? I am sure you couldn't have predicted any of this. That's got to be upsetting. They make the Ross...

Thank you for sharing your story. That sounds like a lot to go through. I have a question about the blood thinners. I have hypermobile Elhers Danlos Syndrome. My connective tissue and collagen is made faulty. One thing people with EDS have, is that they bruise really easily. I pretty much...

Thank you. I wondered if that was the case. I appreciate your insights. LOL. Oh, wow! So many! That's so young! That must have been awful! And so many times! I am sorry! Do you mind sharing why so many open heart surgeries? Is it related to tissue vs mechanical? I have had a lot of...

Yeah.... I am worried about that. That's good to know. Thank you. My pulmonologist has run all the tests he wanted to and thinks it is a heart problem. My cardiologist could only think that I possibly had a stent in my heart.... a hole between chambers.... or something like that. He said if...

Thank you for the reassurance about the "trace" regurgitation. And, thank you for helping me understand that the shortness of breath and extreme fatigue could possibly be caused by my moderate regurgitation. I wondered if it could. I do know that I have too many other things that could cause...

Thank you very much! I appreciate this.

I don't think my reply was done correctly, so I am trying this again. Here are my answers that I already posted listed below: "Trace" TV regurgitation should not be causing any of your symptoms and usually does not require intervention. Certainly mild mitral regurgitation along with moderate...

I appreciate you responding to me. Thank you. And, thank you for the well wishes. I appreciate that. Thank you also, for the perspective on this being a more complex heart situation. I didn't know that it was. Have you seen a lot of different situations? I do hope that they can help me to get...

"Trace" TV regurgitation should not be causing any of your symptoms and usually does not require intervention. Certainly mild mitral regurgitation along with moderate aortic regurgitation could." Thank you for this explanation. "Some of you symptoms sound like they could be from pulmonary...

Hi! I am new to this forum and wanted to introduce myself. I was just diagnosed with 3 heart valve inefficiencies...aortic, mitral, and tricuspid. All three valves are leaking and regurgitating. None of them have stenosis. My heart chambers are not enlarged. My right ventricle systolic pressure...