He was diagnosed with Marfan at age 5. He is now 24.
Gardening, biking, volunteer work, pilates/yoga,theater-retirement is great!
We live upstate New York, outside of Albany, in La
My son will be having an aortic root replacement due to Marfan Syndrome.
I am a retired teacher.
I was online looking up info on Dr. Craig Miller.
Mom of Colin, 24 years old, Marfan Syndrome
Aortic root repair, July 21,2010, w Dr. Cameron at Johns Hopkins
"In the depth of winter I finally learned that there was within me an invincible summer." Camus