BarbJean

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He was diagnosed with Marfan at age 5. He is now 24.

Gardening, biking, volunteer work, pilates/yoga,theater-retirement is great!
Location
We live upstate New York, outside of Albany, in La
Surgery
My son will be having an aortic root replacement due to Marfan Syndrome.
Medications
Atenolol, Losartan
Occupation
I am a retired teacher.
Referral
I was online looking up info on Dr. Craig Miller.

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Mom of Colin, 24 years old, Marfan Syndrome
Aortic root repair, July 21,2010, w Dr. Cameron at Johns Hopkins
"In the depth of winter I finally learned that there was within me an invincible summer." Camus

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