Recent content by AZ Don

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    Question about genetic testing!

    When I found out that I had an Aortic Aneurysm (and later learned also BAV), I went to Mayo clinic in Phoenix. They offered the option of genetic testing, which I took. While they know of some genetic issues that they can identify, such as Marfans, and I think Ehler-Danlos and possibly one...
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    For those who went to the Cleveland Clinic… did they do this to you?

    FWIW, My insurance company has been a pain about pre-authorizations, and the customer support team that I talk to is separate from the team that actually does the pre-authorizations. They didn't have the latest information about my pre-approval and actually said that I should talk to my Dr's...
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    Anyone beside me having issues with the Cleveland Clinic? Cancelling my surgery

    I know nothing of CC other than their reputation as the best cardiac hospital in the world, but when anyone is making verbal promises that they won't back up in writing, that is a red flag. Perhaps if you cancel/postpone the surgery they will have more incentive to sort this out with your...
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    Newly Diagnosed- Bodybuilding and Exertion

    I have a BAV which was functioning well and not replaced when my aortic aneurysm was repaired. While not a bodybuilder I exercise a lot and looked into what I could find in the research. For an aortic aneurysm, which I believe you are at higher risk for with a BAV, lifting heavy is...
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    Aortic aneurism with bicuspid valve - options in 51 year old

    I wasn't given medical advice regarding my valve choices when repairing my aorta! The options were explained by my surgeon but he would not make a recommendation and said that it was my choice, and my cardiologist deferred to the surgeon. From reading this forum over the years I understand...
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    Aortic aneurism with bicuspid valve - options in 51 year old

    I had a valve sparing ascending and partial root aortic aneurysm repair 9 years ago. My BAV was well functioning prior to the procedure. After it had trivial regurgitation, then over the next year it progressed to mild, then moderate regurgitation. But it stabilized there. My latest...
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    How did you discover your valve issue?

    Thanks. Yes, I think AI would be helpful. In my case the radiologist saw that I had a dilated aorta and put it in the report but for some reason left it out of the summary. I think the Dr's only read the summary.
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    How did you discover your valve issue?

    At 51 I went for my first colonoscopy and found I had stage 1 colon cancer. After it was removed I had a follow up PET scan. The Dr called me to say that it was clear, everything was fine. I asked for a copy of the test results and actually read the whole thing (1 page) rather than just the...
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    Sparing the Aortic Root

    I had a valve sparing procedure done for an aneurysm of the root and ascending aorta. The Dr actually spared one side of my root, sparing my coronary artery. I've worried that I could get an aneurysm in the remaining part of the root but 8 years now and it's still doing fine.
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    Variable/pounding heart rate following AVR/Aorta graft

    Aside from a couple short bouts of a-fib post surgery I have not had the variable heart rate, but I have had the pounding. For some it goes away within a year but I still have the pounding 7.5 years later but I'm pretty used to it now. Seems to be associated to the aneurysm graft rather than...
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    this is of course why I go right ahead and ignore Nutritionists

    "Eat food, not too much, mostly plants." - Michael Pollan It doesn't have to be so complicated. FYI, regarding eggs, I believe that some of the studies that came out in support of eggs were funded by the industry. It is illegal (in the US) to label eggs as nutritious or healthy due to rules...
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    Is life getting back to normal after Covid

    Once vaccinated and cases were low and had not yet heard of the delta variant, we were starting to get back to normal. Even went out to a couple restaurants. Then along comes delta and cases are very high here so now back to a new normal. Masks indoors and outdoors if not socially distant...
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    I can't get no sleep

    I had some trouble adjusting to a recliner but my real problem was that a side effect of the metoprolol that I was prescribed was insomnia. Once I realized this I was able to adjust the timing of when I take it and had little trouble after that. Suggest that you check your prescriptions and...
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    Bicuspid valve , aneurysm and complication

    I had a (Bicuspid aortic) valve sparing aneurysm repair as well. Not to be confused with a bicuspid aortic valve repair as my valve was well functioning at the time. It has worked out for me. My valve started leaking mildly after the surgery, progressed to moderate over the next year, and has...
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    Routine tooth cleaning - Precautions

    Yes, for those with prosthetic heart valves, according to the American Dental Association and the American Heart Association: https://www.ada.org/en/member-center/oral-health-topics/antibiotic-prophylaxis https://www.heart.org/en/health-topics/infective-endocarditis They used to recommend it...
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