Recent content by aerfirmie

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    Stroke 1 year ago now covid

    My 18 year old daughter has Covid. She’s had a mechanical valve for several years but had a stroke a year ago. As a result they increased her warfarin dose and added an aspirin daily. But the could not give her reassurance of not getting a blood clot again. I am trying to help her to not worry...
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    Humming in Sleep

    Hi all. My 7 year old daughter had a mechanical aortic valve put in during the month of March. For the past couple of weeks she has been humming in her sleep. Could it be related?
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    Scared So I Will Vent to You Guys

    My 7 year old has a mechanical valve. She's had it about 6 weeks. Anyway, I tried checking her INR 3 times today and the machine said "Lo. QC" as the error. I took her to the lab for a blood draw. We won't know the results until tomorrow. I am panicking about this INR management. I don't...
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    Lump above incision

    Hey ya'll. Just wanted everyone to know for future reference that it turned out to be a hematoma. Thanks!
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    Lump above incision

    Laura has a lump that has formed above her bypass incision in her groin. Anyone?
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    Fever

    Okay. My 7yr old is 9 days post surgery. We are still in the hospital because they want to get the Coumadin level right before going home. She is running a low grade fever once a day. They say it could be because her lungs are not 100% inflated yet. But I am still worried about it being some...
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    Nasal flaring

    Hi. My daughter had OHS 3 days ago. Her oxygen is good, her lungs look good and her heart rate is good. However, her nostrils flare while she is breathing. She says she is not having any pain. The ICU doctor says he is not concerned because she looks good. But I am still worried. Any ideas?
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    Scared Scared Scared

    Oh...another thing I forgot to tell you about. The surgeon was concerned about doing bypass on the chest because of the aneurysm so he did it on her upper thigh maybe??? I don't remember the exact spot.
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    Scared Scared Scared

    Hi everyone. The surgery is over. One of the doctors said it went a lot smoother than planned. The surgeon literally had a big grin on his face and pulled me into a hug!!! I am so thankful to God. We are in ICU now. Laura is not pleased with the breathing tube and wishes the nurse would let...
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    Scared Scared Scared

    Thanks Sarah! What are stents?
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    Scared Scared Scared

    Oh. I don't know what kind of valve she will get and she is not on Coumadin.
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    Scared Scared Scared

    Thanks all. I live near Burlington. We are having the surgery at Chapel Hill because that is where she had her first surgery and we liked the care.
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    Scared Scared Scared

    Hi. I'm aerfirmie. My 7 year old daughter was born with Truncus and a leaky aortic valve. They did the repair for the Truncus when she was 3 weeks old. She's been doing well these past 7 years. Even though her aortic valve has severe leakage, they chose not to operate because her heart has...
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