Met my surgeon this week

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Cameron

VR.org Supporter
Supporting Member
Joined
Nov 3, 2008
Messages
155
Location
Vancouver, British Columbia, Canada
I had my first meeting with my surgeon on Wednesday, Dr. Hilton Ling of the St. Paul's Hospital heart team. He was recommended to me by a good friend who used to be an OR nurse on the heart team at St. Paul's and had scrubbed with Dr. Ling on numerous occasions. Dr. Ling is a very nice guy with good "bedside" manner and a wry sense of humour that helped break the ice. St. Paul's is one of the best cardio hospitals in Canada and has a research centre that has done a number of "firsts" in the field, so I am very confidant that they will do a fine job on such an "open and shut case" as mine - bad pun:D!
Dr. Ling basically confirmed everything that I had already read on the web and on this forum, which was comforting. As both my parents lived to be 79 and my Grannies to 84 and 85 before them, we both agreed that a mechanical valve replacement is probably the best from a longevity standpoint. They use three different valves in St. Pauls, one is the On-X, another the Carpentier-Edwards - can't recall the last one, but they all look much the same. (If anyone has any info on pros and cons of a particular manufacturer it would be appreciated). Again, having him say the valve types and already having seen the names and had that information from the forum was positive reinforcement.
For some reason I have never been worried about the Warfarin regime and, again, Dr. Ling confirmed what Ross has been saying - live your life and work the Warfarin around your lifestyle and not the other way. Don't focus on the very unlikely possibility of bleeding out - if your injuries are that bad you would be in trouble Warfarin or not! He also mentioned that home testing is possible and available - not yet covered under our Provincial Heath Care but he recommended it as a way to have better control. I also just found this article (I used Google and the search string Home INR Monitoring)
http://www.ctv.ca/servlet/ArticleNew...120?hub=Health
that indicates that people doing home testing have lower % of problems, the reson still as yet undetermined.
""Wells analyzed the results of 16 previous studies of home-based INR testing and found that the patients had fewer blood clots, fewer strokes and heart attacks -- and fewer deaths. the results are published in the Canadian medical journal, Open Medicine.""
I understand the machines, that are like blood monitors for diabetis, cost CAD$800-900. I definitely will be investing in one.
All in all I think both my wife and I were very pleased with our visit to Dr. Ling and the confidence that we got from him that we were on the right track. Now we have to have the surgery scheduled, which will probably be in the early new year. The next step will be when I am called in for a pre-surgery class in which they go over the entire process and show movies of the OR, ICU and recovery etc. to help you understand exactly what will happen. About a week after that I will be called in for the surgery.
Dr. Ling advised us that my actual surgery would only last a couple of hours, about 4 hours until I wake up, then 1-2 days in ICU then another 5-7 in recovery. By the end of the hospital stay I will be mobile and able to do ligh dusting but no vacuuming:)!
In all of this experience to date I have to admire those of you in the US who have the additional worry about insurance coverage etc. Whatever you think about the Health Service in Canada, it definitely removes a major source of stress knowing that there will be no financial burden due to the bad luck of having drawn a dicky valve!
 
Happy to hear your appointment went so well. You seem at peace with your choice of surgeon and your attitude is wonderful.

Just a small comment, if I may?
Not everyone in U.S. has stress and worries about insurance coverage. You hear about the nightmare cases and without question there are too many who suffer. But there are also millions and millions of us who have adequate coverage and no more stress than you as to how our bills will be paid. I have been through two heart surgeries, two other unrelated surgeries, several hospitalizations and all of our bills have been covered by our insurance.

I left Mass General Hospital (one of the top five in the U.S.) this last March, after my valve replacement surgery, and there was absolutley no bill for me.

Without question U.S. has to do something about health care/coverage but please don't get the impression we are all desparate about our surgical bills.

I did not intend to turn your thread into a discussion of U.S.health care. Truly sorry but I thought it should be said.

Wishing you the very best. The stress of waiting can be difficult and hopefully the time will pass easily for you seeing as the holidays are coming. That might prove to be a great diversion. Best Wishes.
 
Cameron, I am so glad that you are happy with your surgeon and your surgical decisions- that is half the battle. You should check out the valve selection threads and put a search in for the On-X valve- it is quite a popular valve on VR.Com lately. Best wishes to you and Happy Holidays.
 
I'm glad that you have gotten that "meet the surgeon" visit out of the way. I found that once I had decided on my surgeon, I felt somewhat better about the whole process. If you take the mechanical valve (there are no more "dicky" valves), go with the home testing of INR. Here in Canada we usually buy from Roche Diagnostics and I paid $500 for my Coaguchek XS after I called the sales rep and asked for the brochures, etc. It was incredibly simple. Keep us posted.
 
In all of this experience to date I have to admire those of you in the US who have the additional worry about insurance coverage etc. Whatever you think about the Health Service in Canada, it definitely removes a major source of stress knowing that there will be no financial burden due to the bad luck of having drawn a dicky valve!

I am one in US who has had and still have many sleepless nights and panic attacks about the cost of the surgery. I envy those with adequate insurance coverage. Would be one less worry. Jennifer
 
I am very happy for you, Cameron. You seem at peace with everything and this positive outlook and positive attitude will help you greatly now and after the surgery.

Good luck and prayers:)
 
" .... people doing home testing have lower % of problems, the reson still as yet undetermined."

Excuse the language (and maybe even the attitude), but that is because they are taking a proactive approach to living their life, and are not being overseen by warfarin clinic mis-managers, doctors that only know enough about dosing to be dangerous, and so on.

I have a coaguchekXS, it cost me $500 after getting in touch with the manufacturer and getting $ off coupons etc., and it is the best $500 I may have ever spent.

Sorry to yell, but LONG LIVE HOME TESTING !!!
 
Thanks to my fellow Canadians for the info on where to get the home testing machine - I will follow that up - maybe I'll get one for Christmas so I'll be ready to go as soon as I have the surgery:)!
Apologies for bringing up the insurance issue, didn't mean to sidetrack the discussion:eek:
 
Hi Cameron :

my regime hasn't really settled down. I have had diarrhea since OHS (just over a year ago now) and have been trying out various med combinations to fix that. Gastro seems to think one of the heart meds that I was put on in hospital is the problem, family doc and cardio don't think so. On top of that, I had a bladder infection in August that sent me twice to emergency, the second time my INR climbed to 6.4 or so - they hadn't let me eat or drink in 24 hours and also they filled me so full of demerol that all I did was sleep. (don't know if you know it or not, but food and exercise levels can have a big impact on INR).

So, to answer your question, I am still testing weekly. At the moment, I am tapering off the bisopropolol (sp?). Had been on 10 mgs, 2weeks at 7.5, and this past weekend down to 5. Also, had been takin immodium (2 a day) and that can change my INR to such an extent that I generally take 9.5mg daily when I am not on it as opposed to 7.5 mg when I am on it, just to keep my INR where I want it.

I like my INR to be just above 3, and the last three weeks has been 3.2, 3.0 and 3.1.

For the strips, I pay $50 for 6. :eek: :eek: and consider it money well spent.
 
Cameron, I am testing every 2 weeks with no problems at all... My strips are $7.50
I used to test at the hospital every 4 weeks and I much prefer testing at home more often. It's relaxing.
 
Hi Cameron,
I am a fellow Canuck lucky enough to have been looked after by the Heart Function Clinic at St Paul's - I meet my surgeon on Friday for the first time, a Dr. Abel. I was really interested to see what you had to say about the valve options - I was hoping I could get tissue vales (I am needing both tricuspid and mitral valves fixed or replaced) and, hence, dispense with the whole warfarin issue. But your comments have me less worried. Hilton Ling put in my pacemaker - he's highly regarded by all as a great surgeon who works fast (a good thing apparently). So…good luck with it all and thanks for your info - it is very confidence building.

Suzanne
 
Thanks to my fellow Canadians for the info on where to get the home testing machine - I will follow that up - maybe I'll get one for Christmas so I'll be ready to go as soon as I have the surgery:)!
Apologies for bringing up the insurance issue, didn't mean to sidetrack the discussion:eek:


Will Cameron,glad you got the meeting with your surgeon over with

sounds like you are in good hands.

Now did you get your request letter of things out to santa yet,christmas
is comming.:p

zipper2 (DEB)
 
Thanks,
Good to hear from someone who has actually "been under the knife" of my surgeon and still has good things to say:)! I offered to put the home monitor on my Christams list as my "big" present but my wife was kind enough to put the monitor on the "necessary" list and not compromise my desire for the big TV:D!
Cameron
 
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