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  1. Michellemar

    Nervous about Surgery and the Odds

    Hi folks- I'm writing for an 86 yr old nun who I've been encouraging to get to the Keck center and have the new PERcutaneous valve put in her aorta. Last I checked she was comfortably far off at .1 or so... Just yesterday I asked her jf she's gotten her osier with down there and she said they...
  2. Michellemar

    Endocarditis

    Well, here's an uneducated guess... I initially needed an AVR because the vegetations around my valve were getting too close to .8... So I'd imagine if they kill everything alive in there, the junk will just remain as a crummy bug catcher and u will have to be more careful than before ... Just...
  3. Michellemar

    After 18 years of marriage and six post-OHS my wife, Laura, decided to divorce me

    PairoDocs, you obviously are articulate... I can't possibly feel your pain but having been laid up now over and over for over three years, friends have just kind of walked off as I'm not out "doing things ". It's hard... But somehow it's our path to do THIS MINUTE as we go- pilgrims... Prayers...
  4. Michellemar

    29 Year old with aortic valve replacement - Question about life expectancy

    Listen to kimcdoug! This site has bucked me up more times than I can count. Stick here, boy will you learn stuff and angels come out of the WALLS here when you need them! Keep us updated.. Michelle
  5. Michellemar

    Scar healing - question about the ridge/bumpiness of the scar

    Hey, I'm 7 weeks out from sternum cut -first surgery was minimally invasive an that was 4times as hard on me(?!). Yeah, I wondered the same thing- one side so high- weird(!!!!) but like they say, it goes away... Also I take alot of supplements (turmeric, fish oil, Ubuquinol(coenzyme Q10 but gets...
  6. Michellemar

    Bad day at the dr.

    Tdot...keep the questions coming. I'm curious... My Cardio diagnosed me with PTSD in my HEART MUSCLE because i'd been radiated (mantle treatment for Hodgkins)in my very early 20's. He said they didn't know then it traumatized the heart (I was in the Kaplan Institute experimental program, drew...
  7. Michellemar

    I'm back-with another new valve!

    Steve, pellicle, God Bless you. Said just the right thing. How do people make it without you guys??!!! Heart ,lifted for sure. You are angels. Unbelievable...for the FIRST time in3years I'm no longer taking diuretics. No diuretics! I AM NO LONGER in CONGESTIVE Heart failure. It's...
  8. Michellemar

    St.Jude Bovine valves and proteolytic enzyme therapy?

    Hi guys. Back with my second valve replacement-first an AVR April2011 and Tricuspid replacement 2months ago-done (both) by that incredible Dr. Starnes, the both of them. To save my life is hardly putting it how grateful I am. Have a Q for anyone whi knows this stuff... In Germany proteolytic...
  9. Michellemar

    AVR and anxiety/panic - An open discussion

    Hmmm- having had radiation to the heart (mantle treatment) in my eY 20's it set me up for lifetime PTSD in the muscle itself. My Cardiologist said he'd never met a young person who didn't afterward need meds for the rest of their life. I take Clonazepam- dropped my always fast pulse of 87 to 72...
  10. Michellemar

    One year ago yesterday.

    Congrats! Wierd. I just posted my month anniversary for tricuspid replacement and it didn't show up--????
  11. Michellemar

    One month post op and my heart is still pounding like a hammer--this is normal?

    Hey, I got it too! Both times! Just had a month ago, a tricuspid replacement and I thought that was over ... I have a bovine ST Jude AVR, so loud seemed with earplugs house could or would shudder...and NOW with my one month old new Tricuspid, here we go again ...???? No one' explained it to me...
  12. Michellemar

    I'm back-with another new valve!

    Hi Michellemar here... Been away-am from class of 2011April19 when got my new AVr. Just got new Tricuspid one month ago today! Same surgeon -Dr. Starnes at the Keck Center at USC.went brilliantly. However the walls are closing in on me-help! Hope I can find my old friends Steve Class of 2011...
  13. Michellemar

    REALLy need info. Can AVR porcine valves take hypebaric chambers??????

    Guyswell, THANK YOU for the hope you just gave me. I was getting my affairs in order next week. Well who doesn't need to(?) but you've given me hope maybe I can live again because having had this (2types-Those ticks can carry five or more) I have fought for so long I just couldn't fight...
  14. Michellemar

    Medical Marijuana

    Bina, L-Carnitine helps me keep my heart beating in it's tracks. I had radio ablation for flutter about 9 mos ago...not that that may be relevant... But I was sick, fever and pulling 110 pulse and it helped if my heart started to stutter. Or the Mexican hat dance sort of thing (yuk!)...
  15. Michellemar

    REALLy need info. Can AVR porcine valves take hypebaric chambers??????

    Yep AVR St. Jude porcine 4.19.11, Lyme disease tick bite not treated 1997(!!!!?!). Just diagnosed. I got this far??? Weak but know those spirochetes are huge kill off in hyperbaric treatments...nice to havevmy mind back. BUT... While body cells can take the oxygenation, reverse it by turning on...
  16. Michellemar

    After your surgery, what are some of the things that you found out that surprised you

    Well now, the longer away I am from AVR the more I find this site to be accurate.... In that as they say, EVERYONE IS DIFFERENT!!!! Different because I went thru- and still do - the things everybody mentions. Here's an everyone's different version ... I had mantle radiation in1970 for Hodgkin's...
  17. Michellemar

    swollen ankles 8 wks afterAVR

    Hi guys back from crazy but neat hiatus! My ankles were swollen since 4.19.11 AVR and to this day I take a diuretic-one for non-sulfa users now!! Had been taking Torsemide(similar to Furosemide) but as extra-sensitive to sulfas switched recently to Edecrin- the only non- sulfa I know of. Little...
  18. Michellemar

    Am I done yet? Questions I yr after AVR

    You guys are so darned cool. Wow is all I can say to your responses. My only (only???) problem is that Ive been with him for almost 20 years; I had never openly criticized his judgement but with two prominent USC surgeons saying new aortic valve- now! (my systolic-I had asked to lay down when...
  19. Michellemar

    Am I done yet? Questions I yr after AVR

    Thank you for your replies. My GP figured that rearranging the antidepressant would help. Don't you know, it DID. I journal my bp, meds, etc...and wrote last night- Finally!!! I feel okay again! Hooray!!!!!! I called my Cardio Dr. To apprise him of my meds (left a message for him) and when he...
  20. Michellemar

    Am I done yet? Questions I yr after AVR

    Thank you for your input! It's nice to know I still app have a sense of humor and also that ..most umportNtly...I'm not alone. Thank you, Bina, you've helped me before and I appreciate having "better" to look forward to. Ovie, if you're 8weeks out you're way early, I was hiding under my bed at...
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