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Just curious how long they are lasting in the real world. I had a Ross Procedure in 2004 and Bentall Procedure in 2011 but still have the pulmonary homograft in place from the RP performed in 2004 making it 16 years old. My last echo showed mild regurgitation (up from trace to mild 2 years ago)...

I took this 3 hour course this morning and i just wanted to recommend to anyone who hasn't taken it to consider it. It cost 50.00 to take and I have to take a renewal course every 2 years to keep it current, but I found it well worth the money. There are a lot of myths about CPR that this class...

I'm still recovering from the surgery and dreaming of playing golf again. As a matter of fact, lately I've taken some slow easy practice swings in the yard to test out the sternum. It's still kind of tender but I was thinking about going to the range and hitting some half wedges off of a tee (to...

Nothing much newsworthy. They did not do an echo which surprised me. I saw my surgeon 3 weeks after the surgery and I was told I was going to have an MRI but I didn't. Yesterday I asked if I was going to have an echo and they said no. I said do you realize I haven't had any detailed imaging of...

First time I did 2 miles today. It was 80* and sunny today so I decided to go for it after several days at 1.5mi. I actually worked up a sweat...lol. As a matter of fact I just got done and I am sweating like a pig. I did 0.5mi for a few days. I then did 1mi for about a week (even with the...

...that truck was going fast. I will post more as I feel better. Ended up with a ce bovine paridardial valve for several different reasons with dacron woven root and ascending aorta. Was discharged early Sunday afternoon and I am still struggling...had some rough spots along the way. Talk to...

Second surgery is looming. Pre-op screening tomorrow, cath and then admitted on Monday. Bentall procedure on Tuesday 2/22. I fought so hard for over a year to get financial assistance before something bad happened it has worn me out...I am just ready to get it over with so I can get back to a...

I got a call from a woman at Medicaid who was processing my claim and needed me to scan a document she was missing and e-mail it to her. The reason she said she was processing my claim is that SS Disability has deemed me as disabled. I have not heard it directly from them but it looks like it is...

I have a dilated aortic root, although it now qualifies as an aneurysm since it is well over 1.5 times the size of a normal aortic root (latest measurement was 5.4cm). I also have a dilated ascending aorta (5.1cm). My cardio and surgeon have me on no work, no lifting, and activity restrictions...

I am going to have a consult with a Duke surgeon (that is where I always have gone) who specialized in disease of the aorta. He has scheduled me to have a CT scan with contrast before seeing him. I saw the surgeon who replaced my original surgeon who took a job at Children's Hospital in Denver...

I had a Ross Procedure in 2004 and have developed aortic root and ascending aorta dilation that have started to increase in progression at levels that lead my cardiologists to believe they will not stabilize but continue to increase. I had a surgical consult in August 09 but did not have...

So far my catheter ablation has been a great success (knock on wood). They wheeled me into the cath room with my heart rate at 125-130 and wheeled me out with it at 70-75. It's been very consistent in the mid to high 70's which is about 5bpm below what my "normal" rate usually is. I have been on...

I did some searching but didn't find an answer to my question. When I was in the hospital in May they sent me home on Lovenox 80mg injections twice a day and Coumadin 7.5mg daily. Four days later my INR test resut was a 4.0. My range for a-flutter was 2-3. Ross even called it that I was over...

This time it was semi-planned. I went in the hospital for atrial flutter on 5-11 and they were going to do a cardioversion but they had to scratch it after finding a clot in my heart during the TEE. I'm back but they haven't decided on whether or not to do the cardioversion or a catheter...

22,711.16 If I make a "prompt" cash payment I "only" have to pay 50% of that. Not gonna happen unless I start playing the lottery and win. That's not gonna happen either. The thing is that 11,355.58 (the cost at 50%) probably isn't that bad of a price considering I was on a telemetry unit for 3...

For those who have read about my current situation with a-fib / a-flutter, I have been and am currently going to one of the "best" cardiology groups in the area from Duke University Medical Center. They specialize in ACHD patients such as myself. I also have a "portal" on their website where I...

Hey all, I went to my clinic appointment yesterday and my cardio ended up admitting me for atrial flutter with average heart rates in the mid 130's. Last night they started a diltiazem drip, I recieved one Lovenox injection in the belly, had my first Sotalol and took one 5mg Coumadin. As a...

I'm going to see my cardio tomorrow but given my symptoms that's what she thinks is going on. I saw my GP a week ago today for a follow-up (different issue) and my BP was 128/80 with a pulse of 72. These numbers are good for me for having them taken in a doctor's office. Then on Thursday I...

That is all.

I just thought I would update ya'll on trying to get financial aid (since I don't have health insurance) so I can afford to get my aortic root and ascending aorta replaced and possibly (but hopefully not) have my aortic valve replaced. Here is the update...