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  1. W

    Migraine aura anyone? Or does the cheese stand alone?

    I think the thing I regret the most is never really being honest with my PCP - I'd write things off in the spirit of trying to be tough, or knowing (as you do) that doctor visits can be annoying and a wild goose chase, so I wouldn't bring up anything that might cause more trouble for me ...
  2. W

    Migraine aura anyone? Or does the cheese stand alone?

    That's completely possible - My brain MRI revealed evidence of mini-strokes that my neurologist thought may be caused micro-emboli or TIA ... there is evidence of a connection between being on a bypass machine and micro-emboli. I'm on blood thinners now as well and seems to be helpful.
  3. W

    Migraine aura anyone? Or does the cheese stand alone?

    I also had "migraine with aura" for decades before my heart surgery - They increased in intensity and frequency in the years after my surgery, adding symptoms such as intense deja vu, brain fog and vertigo to the flashing lights I had always experienced. The "migraines" (also often triggered by...
  4. W

    Migraine aura anyone? Or does the cheese stand alone?

    Hi All - Thanks as always for the support and kind words. Wanted to add another update to this running chain. As part of the the sequence of brain scans resulting from my epilepsy diagnosis, they ultimately found a brain aneurysm in my left MCA. A subsequent cerebral angiogram found it to be...
  5. W

    Migraine aura anyone? Or does the cheese stand alone?

    As this has been a topic on this forum for years, and I finally have some answers, I wanted to provide an update. After years of "migraines" and "auras" that started directly after my aortic aneurysm repair and valve surgery (10 years ago) that were never taken seriously by my cardiologists...
  6. W

    Migraine aura anyone? Or does the cheese stand alone?

    I'm six years out of surgery, and in the past few years have found a noticeable moderation and reduction of my ocular migraines. They occur less frequently, and when they do occur, it is for less time. Some of it is just gaining awareness of what the triggers are (for me: strenuous exercise...
  7. W

    Migraine aura anyone? Or does the cheese stand alone?

    These are interesting theories. The calcium deposit theory is supported by the only suggested explanation I ever got from a doctor, who said that the clamping of your aorta during connection to a heart/lung machine can loosen debris (not just calcium, but plaque, etc) which slips through the...
  8. W

    Migraine aura anyone? Or does the cheese stand alone?

    When we all talk about triggers, it seems the biggest trigger is heart surgery itself. I remember waking up from my surgery with a massive occular migraine. At the time, it occurred to me how odd it was that under all of the anesthesia, blood pressure control, pain medication, etc., that I could...
  9. W

    Migraine aura anyone? Or does the cheese stand alone?

    I do know they have connected heart valve problems with migraines in the past. High blood pressure, as well. There is a definite link. In my case, I had a bicuspid aortic valve, with my surgeon explained is a circulatory defect formed while in the womb. It follows that the genetic markers that...
  10. W

    Migraine aura anyone? Or does the cheese stand alone?

    I empathize with your struggles. One thing I learned over time is that this is not eye-related - it's definitely an issue with the visual cortex in the brain, where vision is processed. A doctor once theorized that the heart-lung machine impacts the tiny blood vessels within the brain, which can...
  11. W

    Migraine aura anyone? Or does the cheese stand alone?

    As I approach my six-year anniversary, it's interesting to note that the only lasting side effect of the surgery has been the vision troubles. I've generally returned to the same physical shape I was in before, the scar has faded into irrelevance, I rarely think about my heart outside of my...
  12. W

    Migraine aura anyone? Or does the cheese stand alone?

    You can find the longer story in another chain, but in recap: For five years, starting the day after my surgery, I had all the problems described here: Auras throughout the day, vertigo, double vision, and odd bouts of brain fog and deja vu. All of it eventually diagnosed as complex migraines...
  13. W

    Vision Disturbances and Migraines

    Had the same experience as all describe here: Woke up from surgery with flashing lights. The auras continued for years ... It'd happen every time after exercise, but I'd also wake up with them. Sometimes it'd happen dozens of times throughout the day. I eventually got used to it, as they simply...
  14. W

    Migraine triggered by heart rate with exercise

    I'm right there with you. The visual auras started literally the day after my surgery, while laying in recovery. That was 2 years ago. Now, they almost exclusively happen after exercise, which is a bummer because I try to exercise as frequently as possible. I've noted caffeine as a trigger as...
  15. W

    Having doubts about my elective surgery on the 14th April

    Nearly all of us considered postponing or canceling the surgery, especially the days before. It is a totally normal and expected sensation. Once in the hospital, my surgery was delayed about six hours, at which point I seriously considered just walking out and going home ... the anticipation was...
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