Recent content by mom of 5

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  1. M

    Misdiagnosis

    While I hesitate to comment on miracles .... I will say this . My doctor also refers to my valve as a probable bicuspid valve most likely two of the valves are one misshaped one not just two regular valves with one missing .So in this regard most of the time God only knows ! :) I think a lot of...
  2. M

    activity tolerance

    Lyn I was referring to a new variation on one of the many surgical procedures not total number of surgeries done to repair aortic regurgitation or dilation etc. Sorry I am not always so great at putting on "paper" what I think I am !
  3. M

    activity tolerance

    I finally found what I had read several years ago . The procedure I am referring to is called open anastomsis with hypothermic circulatory arrest . This is done when repairing the aortic valve and root and ascending aorta , also arch . So no bypass . The morbidity rates I found ( including 15-65...
  4. M

    insurance

    Once again and more than these words can express thank you , thank you !!!!!! :)
  5. M

    activity tolerance

    I hope this dose not sound rude because I so , so am not trying to be . Can all this be right ? I know a valve alone is a big , big deal !!! I know an aorta is a big big deal !!!! I keep seeing ascending aorta , dose this include the aortic root and arch ? I will have to look back . The last...
  6. M

    activity tolerance

    I was passing out from PSVT , ( perioximal super ventricular tachycardia ) , the fastest caught on monitor was like 240+ per minute the beat is originated in the ventricle . This also is a birth defect just with the " electrical " pathways. They burned specific defective paths and put a stop to...
  7. M

    insurance

    Thank you ! Knowing that is excellent ! I will begin my hunt with he knowledge it is possible as my fuel ! Thank you !
  8. M

    activity tolerance

    I thank you both for your response ! I have only had heart caths ( I think six ) most with ablations for PSVT . I never had problems as a kid . I began passing out , u know on stairs and with my second born infant son in my arms . I kept passing out irregardless of meds , so the caths began...
  9. M

    insurance

    Dose any one know a person who had surgery with out any insurance ?
  10. M

    activity tolerance

    I expected to find everyone with a BAV and dilated aorta with a very low activity tolerance and daily arrhythmia s as a "present " for not sitting down sooner or for no reason at all . I can not say as some I live every day in fear of dying because I do not . My only major reaction was...
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