CindyWilson
Active member
Hello everyone, my name is Cindy and I am 46yrs old. I am so glad to have found this site. I have been reading everyones post and I am hoping this is where one post from. I was missed diagnosed for about a year I went to my third primary doctor who sent me for an echocardiogram. The test was set for next thursday (April 12, 2007), however, tuesday (April 10, 2007) I ended up in the er in complete heart failure. My mitral valve was pretty much nonexistant. I had an echo, heart cath, and surgery MVR. I had no idea what was happening. I was givin a porcine heart valve. The hospital I went to was a very small hospital they were not going to do the surgery but I was not stable to move. I had sever pulmonary hypertension. The cardiologist on call did not want to put me on the heart cath table or the or table was worried about my lungs. Thanks to the greatest pulmonologist he made the cardiologist go forward told the cardiologist he would take care of my lungs to do what he needed to do and find a surgeon. Well things went great, surgery wasnt as bad as the anixity. I felt great for about 5 weeks then things started going down hill again. I found a new cardiologist and he is diagnosing me with severe Aortic regurg now. He wants to wait atleast 2 years between surgeries. Wasnt sure if we were going to make it cuz I was not stable with blood pressure, heart rate, and amount of fluid I take on, I am easily fatigued and out of breath. Now its been 1 and 1/2 years and I am much more stable still fatigue and sob. However, the echo last week shows problems with the new valve as well. He noticed it 6 months ago and it is getting worse. Now we maybe looking at replacing both valves mitral and aortic with mechanical valves. He said he would like to wait till 2010 if we could baby me with medication. He claims he doenst want me to get as sick as I was last time. I sure hope not the waiting is not fun. Not looking forward to coumidin. I hear the diets and dosages get complicated. I was wondering if anyone else has had more then 1 surgery and if yes how long was it between surgeries? Any advise would be helpful.
Thanks
Cindy
Thanks
Cindy
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