Waiting for a date on the "Wet Coast"

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Cameron

VR.org Supporter
Supporting Member
Joined
Nov 3, 2008
Messages
155
Location
Vancouver, British Columbia, Canada
I just found and signed on to the forum yesterday - looks like a great place to share experiences.
A couple of months ago I was diagnosed with acute aortic stenosis due to a calcified bicuspid aortic valve. The reason I went to the Doctor in the first place was that I had experienced tightness in my chest and tingling down both arms during a brisk walk. I am 55 and, on reflection I had experienced some symptoms at least 10 years ago. I did a lot of long haul flights and almost every time I came off a flight and was walking through the terminal I would feel some tightness and tingling - I always just thought it was the result of sitting in a pressurised tube for 10-13 hours!!. I had an echocardiogram and an angiogram and my valve is down to 0.6mm and I am now waiting for an appointment with the surgeon to schedule a date and make the decision on valve type. All the other bits of my heart are working perfectly so I am expecting a pretty routine surgery.
What I experienced was more like feeling indigestion - a discomfort similar to when a piece of food goes down the wrong way and feels stuck. Tingling in BOTH arms similar to when you wake up having pinched off the blood flow. I also had one experience when I woke up feeling that I was having trouble breathing and was easily made out of breath all the rest of that day - I am borderline asthmatic so again I first attributed the problem to that rather than the heart thing.
I have never experienced what I would call pain - just discomfort and tightness and occaisionally this occurs while simply couch potatoing - of which I do a lot! I also have stopped any exercise regiment until I have the surgery.
So far I am OK with the process and the diagnosis and the approach of the docs involved i.e. you have a problem, your heart is not yet under too much strain, better to get the procedure done before the heart is damaged. Mentally I am OK as I don't have any second guessing to do about "I could have done" or "I should have done" - it's the luck of the draw and I am looking forward to feeling better - having had this progressively worsen over at least the last 10 years the Doc says have gradually adjusted to the reduced function and will be surprised at how much better I will feel going forward. Looking forward to it and now hoping to get the date set and get to moving on.
Cameron
 
Welcome Cameron! Like the name it reminds me of the "Clan Cameron"
and Scottish Jacobites,and the battle on Drummossie Moor.

I had the opposite problem as you-regurgataion,but I did have some of the
same symptoms. Like the chest discomfort at rest,tingling,dyspnea.
I also had an otherwise perfectly functioning heart until I waited over-
long to get my surgery.My malfunctioning valve put a strain on my heart
and caused enlargement which looks to be permanent. I try to tell those
who are waiting for surgery my mistakes in hopes that they won't repeat
them.But I was symptomatic for years and didn't push to have the surgery
as I should have. It is SO easy to accept a "We'll wait" from your surgeon.

It's great you found this site..there is a wealth of information and alot
of helpful and experienced people here.
Dina:)
 
Wow Cameron, I wish I'd had your sensible attitude in the years waiting for surgery. Welcome to the forum. I suspect you and your doc are right, you'll probably have a pretty routine surgery, and you'll feel a lot better. That's what happened to me.

Still, now that you've shown up, we'd like to keep hearing from you.
 
Welcome, Cameron. Be sure to let us know when you have that date and we'll put you on the calendar!
 
I just found and signed on to the forum yesterday - looks like a great place to share experiences. ...

Mentally I am OK as I don't have any second guessing to do about "I could have done" or "I should have done" - it's the luck of the draw and I am looking forward to feeling better ... Looking forward to it and now hoping to get the date set and get to moving on.
Cameron

Welcome aboard, Cameron

You have a great attitude and this will greatly help you now and later--keep it up, and keep us updated.

With prayers,:)
 
Hip-Hip Hooray another Canadian :cool:

Welcome to the family Cameron and this is a great place to share darn near everything. Heck we even talk about ............I won't mention it cause this thread will go off into THAT direction. ;)

Please feel free to ask anything that concerns you.

We're to support you in anyway possible.

And the next time I'm in Vancouver I could look you up :)
 
Welcome from another fellow Canuck! So glad you found us. It sounds like you are on the right track mentally. Keep us posted and we will be there to support you to the other side of the mountain.
 
Welcome Cameron. Happy you found us but sorry for the reason.
Sending you best wishes. We're happy to help you in any way possible.
 
Welcome and hello Cameron,Glad you found us

looking forward to your posts here,don't be shy

ask away and someone will help you out always.

zipper2 (DEB)
 
Welcome to our wonderful community. You have an exceptionally good attitude for someone who's just been given pretty dramatic news. Good thing you are here so you can get reinforcement for your sensibilities. You are going to feel better! You are going to be amazed at how easy it is (well, compared to what one's imagination might brew up)to go through this surgery since you don't seem to have any overriding issues otherwise.

.6 cm sq for the aortic valve is very small. Many of us have noticed that when it falls below that "magical" 1.0 (when the warning bells go off for the cardios), it hovers for awhile, and then starts to close up a little faster, the smaller it gets. Not in a matter of days or anything, but over the months rather than years. So if your surgeon is thinking soon, you should probably believe him.

Feel free to ask us anything and everything. We'd love to help usher you through this.

Best wishes.

Marguerite
 
Welcome to our wonderful family...its always good to find a place full of people just like yourself...let us know if we can help with anything....there are hundreds of years worth of experiences here.
 
Hip-Hip Hooray another Canadian :cool: and Scot ! :D :D

I was 52, had no other medical problems, except overwieight and :eek: smoker. The worst part was the waiting before . . and I ended up losing my bed in the step-down unit, stayed in ICU for a couple of days longer than I should, or I would have been home in 3 or 4 days. Man, was I ready to get out of there !!

If you can, in the time before, walk as much as you can. "I also have stopped any exercise regiment until I have the surgery."

Post any questions you have !
 
Thanks everyone, especially to those other Canuckleheads :D,
Was just informed that my prospective surgeon has had a minor accident while on holiday - hopefully not to his "surgeon bits"! :rolleyes: His office says it will probably be another week or so before I get to see him and discuss things.
In the mean time I do make it out of the house now and then :), but the 6 months of rain of a Vancouver winter has already started, so I'll have to get my booties on!
Cameron
 

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