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Gnusgal

Gnusgal

Well-known member
Joined
Sep 1, 2002
Messages
2,038
Location
Texas
I don't feel like retyping everything again, so I'm just going to copy/paste from my caringbridge site. Here you go:

Crap. Crap, crap, crap, crap, crap. Sorry for the language, but why can't anything go smoothly for me? Allow me to explain:

I went to my 'echo with A/V optimization' appt. today. I had fun with the new techs learning all about how to do an echo on someone who's completely backwards. We laughed and joked for over an hour while they tried to figure out what they were actually looking at. Apparently no one had warned them about me before I came. Good thing I always say something at the beginning of every appt! With all the teasing going on, it's no surprise that Dr. DeVille's news for me completely blind-sided me. Apparently the left ventricular lead (the one that we got this Bi-V device FOR) is not 'capturing' (in other words, it's not working right). I asked him what that meant and he said we'd have to 'fix it.' So I asked how THAT would happen, and he said we'd have to go in and replace it! Grrr... That means more surgery and more restrictions. :-( He said he wasn't 100% sure about it, but it was likely. He sent me to have an x-ray done to see what was up with that lead and he'll review it this afternoon and get back to me. Not sure when. So until then, I wait I guess.

This is SO not cool. I thought that things had been going so well. Infinately better than the last attempt. But I guess I'm going to be sticking to my 'rule of three' yet again. It seems that lately every time I have surgery, it turns into three close together. Hopefully the next one will count as two as he plans to take out the other pacer while he's got me off coumadin. So that would be two incisions, surely that would count??? Phooey. I was in such a good mood before. Now I'm grumpy. And Nathan is working and I have bookbinding, so I won't be able to talk to him about it until late tonight. This stinks.
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Niki,

I would try to kid you and tell you that you have to stop trying to go for the records on everything but you seem like you merely need a hug.

I am sending you a big hug and, yes, this really stinks. I will be praying for you.
 
Yes, Niki, this really stinks. Go ahead and take some time to be really ticked-off about it. In the meantime, I'll be praying that you continue to have the amazing strength you always seem to muster. Hugs.
 
Remember when you were a kid:confused: Jumping up and down and screaming. "That's not fair":( :mad:

Sorry to hear it. Hang in. You will overcome this hurdle:)
 
Damn, Damn, damn, damn, damn, damn!

SO, did they really get your test right?

I'd want to be SURE they REALLY know what's going on being before having yet another surgery.

Sorry about that Niki.

'AL Capshaw'
 
So sorry to read about your news, such a shame. Sending best wishes and hugs your way.
 
Dang hon, your in trouble as much as I am. No it's not fair at all. Deal with it the best you can. I know for me, everytime is getting harder and harder.
 
Very sorry to read this Niki. Is it an installation problem or is the unit or lead defective?
 
Susan BAV said:
Very sorry to read this Niki. Is it an installation problem or is the unit or lead defective?
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Not sure. He thinks the lead shifted. It was working fine 4 weeks ago. I hope to know more soon. I called my cardiologist and she didn't know anything about it yet. Guess the EP didn't get ahold of her yesterday. My card is going to get my local EP in touch with the Mayo EP so they can talk and figure out what to do. Other than that, I'm clueless. But I can't seem to get my mind off of it, so I've been completely unproductive at work today. I kind of wish I had the spare sick days to just take the day off and go home... DH got called this morning to say they were overstaffed and he didn't need to come in. Wish that would happen to me once in awhile. ;)

My whole body just feels numb at this point. I don't know what to do with myself. I keep trying to figure out what the plan will be, even though no one has said for sure what will need to be done. But part of the reason I had my trip to the Mayo over Spring Break was because my sister is having a baby at the end of May and I want to be well to hold my new nephew (he's the first!). Now if I need another surgery I don't know if I should go ahead now and have to take more time off work (not something I like to do), or wait until summer and miss out on 4 weeks of baby-holding. It just plain stinks any way you look at it. Usually I'm able to see silver lining, but so far I'm at a loss as to what it might be for this one.

Thanks for the hugs, curse words, and support. They're very appreciated.
 
Gnusgal said:
Usually I'm able to see silver lining, but so far I'm at a loss as to what it might be for this one.
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Welp ... you ARE still living and with us right now ;).

*pauses*

And that coming from someone who used to never be able to find any silver linings ;) ... he he ... irony rocks!


Seriously, though, Niki ... thoughts/prayers continue coming your way. Wish I had some extra time off ... I'd come back to Texas to see you (and everyone else there, of course) again ... I have a feeling that would put a smile on your face. Er, at least, I hope it would ;).



Cort:33swm."Mr Monte Carlo.Mr Road Trip".pig valve.pacemaker
PICS:lego.HO.model.MCinfo.RT.CHD = http://www.chevyasylum.com/cort
my radio show:CD SHOWCASE.7:30p central.Friday/April 20 = www.wrmn1410.com
 
Niki,
I was so sorry to read your post. I just can't imagine going through all that you have and being so young. After reading your thread I kicked myself in my tail end for feeling sorry for myself about the bumps I've hit lately. I will be praying things work out better for you - somehow.
 
Hi, Niki--
Not much else I can say in addition to everyone else, but I am thinking about you and hoping for the best for you.

Debi
 
Hi Niki,

Hope everything works out fine....dont know what to say, just that be strong and I will pray for you
 
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