Justin's cath update

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gijanet

gijanet

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Joined
May 18, 2004
Messages
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Location
Arlington, Tx.
Just read this on PDHeart. It's also posted on Justin's page. Justin's cath went great - no complications, but the news was not so good. Justin needs another OHS. I know they must be sick about this. I know I got a knot in the pit of my stomach just reading the update. This is a such a blow! I know Lyn would appreciate your support and prayers, so let's get started on those now please. Lyn, (((hugs))) you have our love and I'm so, so sorry sweetie! The prayers will continue as well.

Thursday, April 5, 2007 12:49 AM CDT

Hi- This is Lyn's friend Dorothy doing an update.

Justin is out of his cath and did great . That is the good news. Lyn said his heart pressures were equal on both sides and his heart looked great,his conduit is great but the not so good news is that he needs another OHS. The conduit is evidently narrowed at the place where it connects to his heart so they need to open him up to replace it. Lyn asked if they could do a stent or cath but no it has to be open heart and it has to be soon. So of course this is not what we wanted to hear and we will all be praying. Lyn asked me to let you all know since she knows how many people are waiting for news. Lyn also said she will let everyone know when they have coordinated everything for the surgery.
 
Not completely the news I was waiting for. Good news on the pressures. I'm just pretty much at a loss for words on the OHS...other than my prayers will continue. Sending you my {{{{{{{hugs}}}}}}}} Lyn.
 
Thanks for posting, Janet. Sending Lyn, Justin and all the family our prayers and hugs.
 
Thanks Janet for the update. Lyn, Justin & family, I am sorry that the news was not good. Sending hugs and prayers.
 
Lyn/Justin,

Glad to know your cath went well, Justin ... but, very sorry you are facing more OHS.

Thoughts/prayers coming your way....



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PICS:lego.HO.model.MCinfo.RT.CHD = http://www.chevyasylum.com/cort
my radio show:CD SHOWCASE.7p-11p central.Friday/April 6 = www.wrmn1410.com
 
Lyn...............

Lyn...............

Just can't get you guys off my mind................and I just keep thinking damn it, damn it, damn it! Ya know, Justin didn't really have to try and match Katie on the number of surgeries..............sigh!..................except it's worse for you guys in a way because Justin is so fully aware of what's gonna happen, what it entails, and the sucky recovery period that is going to keep him from doing all the things that he loves best for a while........... I know, too, that trying to console him with the fact that his heart looks great and his pressures are good is not going to offer much comfort.:(

Feeling really down in the dumps for y'all and knowing there is absolutely nothing I can say to soften this blow. Just wanted you to know you are on my mind and in my prayers. Love you guys. ((hugs)) J.
 
Lyn, you and Justin are in my prayers. I know this is upsetting news, but hopefully this will be it for a good long while. Especially since the rest of the cath results sounded good! ((((hugs))))
 
Hi guys, thanks so much.He's going to most likely have his surgery
at CHOP again, I have to start all the calls today. My hope is as
soon as this semester is over end of april/beginning of May, so he
doesn't screw this semester up and can start healing. Over the phone, the pressure explanation got a little screwed up, I appologie. His pressures are really bad in the right side of his heart, For the most part his conduit/valve look great, but right where it's sewed to his right ventricle, it's pretty
blocked, his pressure gradient is back up to almost 100. just
bllllleeeechhh. BTW his last surgery was may 2nd.We weren't completely shocked, but still were hoping for better answers or at least something that could be helped w/ something easier like a stent, but...He said he thought
he'd need surgery because it was just a gut feeling and he is always
tired, he feels like he did in high school that he thought was
"normal" until he had his last surgery and felt so much better.he is
disgusted and bummeed, but just said "ok" when we told him, I told
him if he felt like it he could yell, scream throw things , and he
said , that wouldn't change things, so I just deal with it. He is
better than me I want to do all of the above.
He is not happy that this will be the 3rd out of the last 4 summers
he spent recovering for surgery 10th grade the pacer broke so had to be romved from where it was under his ribsby his abdomen, 11th grade was his
last surgery 12th was good at least he could enjoy all his senior
stuff and this is his freshman college summer and back to surgery :O(
Well I'm going to call Spray the surgeon at CHOP now and try to figure somethings out. thanks for the prayers and please keep them up while we figure out what would be the best way to go. Lyn
 
Hi Lyn - What a mature response from Justin! Interesting that he strongly felt that things were going wrong; I strongly felt like that before my valve replacement too. And every mother here can totally relate to your feelings also. I sure am sorry to read the news and hope that all goes well. Take care and please keep us posted.
 
Justin is remarkable. Prayers coming his way that this is the last surgery and then he can get on with a glorious college career!
 
Oh Lyn - I'm so disappointed for Justin and of course you too! He has a wonderful attitude towards it which can only aid recovery surely?!

Completely understand your feelings and am thinking of you and sending love!!!

Huge hugs
Emma
xxx
 
I'm here if you need me Lyn.
In the meantime, you all are in my prayers.
 
Lyn,

I think Justin's reaction to this is amazing. I don't think I'd be that accepting/patient.....

Thoughts/prayers continuing, of course....



Cort:33swm."Mr Monte Carlo.Mr Road Trip".pig valve.pacemaker
PICS:lego.HO.model.MCinfo.RT.CHD = http://www.chevyasylum.com/cort
"Enough is enough, I can't take anymore" ... Alabama ... 'Can't Keep A Good Man Down'
 
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