A long road to health

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J

jax3172

I would like to share this with my VR.com community.

It's been almost a year after AVR and ascending aneurysm repair and I am starting to feel human again. I have had mild PH, liver complications, stroke, impaired swallow, vision, and speech, a feeding tube because of the stroke, A-fib, tachycardia (fast HR and abnormal beats and PVCs), hypothyroidism, artery problems in my leg, chest pains, and the common cold (poor attempt at humor).

I knew I was starting to feel pretty good and I was loving it but yesterday I was told that my pulmonary artery pressure was back to high normal. I'm walking 2 to 4 miles a day, and I now believe that kayak surfing and scuba and skiing (at altitude!) and climbing and some gym work may not be just a memory. Knock on wood (my head)! Annual with my surgeon is a month off and he's asking for a high res CTA. If the plumbing is all in order and he gives me a reasonably good bill of health, I'll off and running.

Some of us are in recovery but many of us are still chasing the illusive butterfly of health. We want it so bad we can taste it. Some of us remember it and know we didn't appreciate it. Sometimes, when we "feel bad", it becomes difficult to focus on anything else. We're not sure what's going on with our bodies and the fear of the unknown is awful, and the drive to find out what's wrong can be all consuming.

What I really want to share is that I have been inspired by the VR.com community and it's an honor to be part of it. Your knowledge is incredible. Your suggestions are very helpful. But most of all, you all collectively have the "gift" of encouragement. I've personally been on the receiving end and you have no idea how much it has helped.

So as I begin to feel somewhat better, I want to share it with you all. I hope it continues. All I can say is thank you for the encouragement over the last year. I promise I will fully appreciate whatever level of good health I may attain. I hope and pray (seriously) that every one of us can return to good health. And for those of us that cannot, my heart and my prayers are with you.

Jack
 
Jack,
Thank you so much for sharing your story. You are so right - many of us have the ups and downs. I think the important thing to focus on is that we are all still here to post and try to help others along the way. Often, just knowing "I am not alone" is enough to make it over humps. And, when it's not, there are always those who hold our hands and send out hugs, love and encouragement.
I wish for you to have a perfect second half of 2006. You are in my prayers.
 
Thank you Jack. Your post comes at a rather great time for me, as I just had some news that I've known pretty much all along, but was ever hopeful that would improve. Instead, I got smacked in the head with the reality of it all yesterday. I'm still spinnning over it.

Your words here are the same as I've felt for the last 4-5 years about this place. Thank you again. :)
 
Jack, thank you for sharing your thoughts. We are all in this together and come from a place of similar understanding. Life is prescious.
 
Jack, you have indeed had a long hard struggle.

Some sail through without any complications, others have a few, and then there are others who get hit with everything but the kitchen sink.

It really stinks, BIG TIME!!

My husband is in the group that has many, many medical problems related to his having rheumatic heart disease which has affected about every organ in his body.

The only thing that has kept him going is his attitude which is unbelieveably strong for what he's had to suffer. He just never gives up and is always looking for whatever treatment will help.

You sound like the same kind of person.

I applaud you for coming through all this stuff, and still having the will to keep up the fight.

You will attain the best health for YOU. And that is all any of us really can attain.

Congratulations on your spirit!
 
Jack

What a GREAT post -- I am sure it will brighten the day for many here.
 
I can only echo the thoughts expressed by the others, Jack.
We share each other's disappointments and despair, but we also rejoice in other's joys and accomplishments as they regain their health.
We've all walked the same road, and we realize that we will continue to walk it all the days of our lives.
I'm glad you've managed to catch your breath, regain your footing, and run past some who are still struggling.
Keep going, and we'll see you further down the road.:)
 
Thanks for a beautiful post, Jack. It's what VR.com is all about. Sending you best wishes for a continued, steady recovery and all the pleasures you can squeeze out of life.
 
Road to health

Road to health

Jack,

Your post has come at a great time for me. Thank you for sharing. I also have PH and I'm really quite afraid. I'm starting my first job in three years and I may not be able to handle it, but I need to find out. I'll keep your words in mind if it doesn't work out the way I want. I will keep you in my thoughts and thanks again for your words.

Barbara
 
To Catch a Butterfly

To Catch a Butterfly

Jack,

Love the butterfly metaphor. What's heartening is that we can catch that butterfly of good health. Takes a mighty effort but it can be done. Thanks for the inspiration you provide.
 
Wow you had a tough go at it. Glad your at the end of your troubles and ready to get on with the things you love to do.
 
Jack,
Thank you so much for sharing your experiences. Sometimes I feel sorry for myself and I have actually done well. You have a great attitude and helps to put things in perspecitve. I hope for you that each day brings you closer to your goals.
 
Jack - I am

Jack - I am

inspired by your story. I called you Jax on my thread - sorry about that - just read this thread and see that your name is Jack. Anyway....

So glad to hear that you are on the mend. You have been through a lot. And yes, VR.com is a wonderful place to come to, isn't it?

Have a wonderful summer!

God bless -

Christina L
 
Yes, what a beautiful post..........

Yes, what a beautiful post..........

You have our prayers, and, Ross, dear, you have ours, too.............have you been hiding something from us? Much love to you both and many hugs. J.
 
THank you for sharing such a lovely post..
I am sorry that you have had a rough year, but your attitude is beautiful, and I hope that you can catch a net full of butterfly health!!
 

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