On-X Aortic Heart Valves: Safer with Less Warfarin

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Following up on the 2012 issue

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  • Following up on the 2012 issue

    Its been a long road, which may be coming to some sort of conclusion soon

    http://cjeastwd.blogspot.com/2017/10...-labelled.html

    That conclusion could easily be "lifelong oral antibiotics" or "freedom"

    Will post the results here rather than "that thread" to spare the delicate from pictures of reality and (as Agian observed of another picture) an upset man.

  • #2
    Here's hoping that all these years of antibiotics have sent those buggers back to the stone age, pellicle. You've paid your dues, and then some. I hope you are now granted your freedom.

    I've had my share of being radio-active. It isn't all that it is cracked up to be. . .
    Go Class of 2011!

    Steve Epstein
    9 Years in The Waiting Room, then on February 28, 2011,
    AVR with 23mm Edwards Bovine Pericardial Tissue Valve, Model 3300TFX, Pacemaker - Boston Scientific Altrua 60 DDDR IS-1 and CABG (LIMA-LAD) at Northwestern Memorial Hospital, Chicago by Dr. Patrick McCarthy and the most wonderful team of professionals I could ask for. New pacemaker (Boston Scientific L101) and ventricular lead, July, 2016.

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    • #3
      Originally posted by pellicle View Post
      Its been a long road, which may be coming to some sort of conclusion soon.......

      ........That conclusion could easily be "lifelong oral antibiotics" or "freedom"
      .
      I've got my fingers crossed that it's "freedom".

      Starr-Edwards mechanical AVR 1967 at age 31.....University of Kentucky Med. Ctr., Drs. Richard Wood & Gordon Danielson surgeons. No surgery (heart or otherwise) since. On Warfarin ACT since surgery with no diet, lifestyle, or activity restrictions....and I live one day at a time.

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      • #4
        Wishing you well on a favorable outcome. Antibiotics might be one of the greatest medical discoveries of the last 100 plus years, but they can create a whole mess of problems on their own.
        10/15/2009 - St. Jude Medical Valve / Conduit Graft 25mm. Dr. Robert Hooker Jr at Meijer Heart Center, Spectrum Health Butterworth Hospital, Grand Rapids, MI.

        September 2009 - diagnosed with 4.9 cm ascending aorta with two aneurysm bulges.

        11/21/1990 - St. Jude Medical Valve 23A-101. Dr. Seong Chi at Ingham Regional Medical Center, Lansing, MI.

        Aortic Stenosis and BAV diagnosed in infancy.

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        • #5
          Good luck !!!

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          • #6
            Hey, thanks for the well wishes guys.

            Just so you know the schedule it will be:
            1. wait till I hear the results of the scan as intrepreted by my Infection specialist Dr, If its clear then cease antibiotics and go to next stage
            2. follow up scan in 3 more months: if clear continue
            3. follow up scan in 6 months: if clear continue
            4. if after a year I'm still clear I'll probably have another scan in a year
            at that time I'll be comfortable that its gone. BTW, each PET scan is $450 out of my pocket (not to mention the fuel for the 400Km round trip to the location as well as parking at hospital gouging rates, so over $500), as this is not covered by any "health care" because of its nature. But ... well ... you can't take it with you right?

            Back at the time of my second debridement I identified this graph in one of the very few studies of propioni-bacteria infection of the sternum / prosthesis, its results were quite sobering and led my infection guy and I to make the decision of ongoing Suppressing Oral (antibiotics) Therapy

            ... as you can imagine I was big on informing myself on this issue at the time and quite vocal in dealing with my specialist. He initially described me as intense. I repied that "if your life was in this situation would you be passive or agressive in your approach" ... he nodded and we got on like a house on fire after that point.

            Will update as it occurs
            :-)

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            • #7
              Pellicle,

              Thinking of you and really hoping that you get some good news. You certainly deserve it. Lots of costs associated with your health, but hey... you are worth it.

              Thinking of you and sending my very best of wishes,

              Will stay tuned...
              Last edited by ottagal; November 1st, 2017, 06:04 PM. Reason: Duplicate post
              CE Perimount Aortic Bovine Valve

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              • #8
                Pellicle,

                Thinking of you and really hoping that you get some good news. You certainly deserve it. Lots of costs associated with your health, but hey... you are worth it.

                Thinking of you and sending my very best of wishes,

                Will stay tuned...
                Last edited by ottagal; November 1st, 2017, 06:04 PM. Reason: sorry...duplicate
                CE Perimount Aortic Bovine Valve

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                • #9
                  I think it will be good news. Thinking of you matey.
                  Bicuspid Aortic Valve. Moderate Aortic Valve Stenosis. Ascending Aorta: 4.1cm
                  In the waiting room.

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                  • #10
                    Wishing you the best results, pellicle.
                    Eva

                    Aortic & Mitral valves replaced with St. Jude Mechanical valves @ age 57 on 9/2/08

                    INR home tester/Coagucheck

                    Forum Rules: " .... medical opinions expressed in this forum are the personal opinions of individuals. No person should at any time
                    act on the information contained herein without the express consent of your own physician."

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                    • #11
                      Hoping that you get some good news!!!
                      Sue - Surgery 10/14/15 at St Francis Hospital The Heart Center, NY (55 yr old)
                      BAV Replaced, St. Jude Mech Valve - Aortic Aneurysm Grafts, Ascending & Arch

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                      • #12
                        ditto on getting only good news!
                        27mm St Jude mechanical AVR, MV repaired.4/11/15 at 39 yrs old. BAVD.. Sternal wires removed 28/10/16.

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                        • #13
                          Good luck mate!

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                          • #14
                            I'll say one thing -- since you obviously reviewed and understood that graphic, and unless I am mis-reading it, it isn't very encouraging (in general), you MUST be a very goal-oriented and highly focused individual to pursue aggressive treatment over the long haul. Too many patients might have just given in to. . . "whatever." But they would likely not be here to join our band of merry folks.

                            I, for one, am glad you are INTENSE!
                            Go Class of 2011!

                            Steve Epstein
                            9 Years in The Waiting Room, then on February 28, 2011,
                            AVR with 23mm Edwards Bovine Pericardial Tissue Valve, Model 3300TFX, Pacemaker - Boston Scientific Altrua 60 DDDR IS-1 and CABG (LIMA-LAD) at Northwestern Memorial Hospital, Chicago by Dr. Patrick McCarthy and the most wonderful team of professionals I could ask for. New pacemaker (Boston Scientific L101) and ventricular lead, July, 2016.

                            Comment


                            • #15
                              Yep. Thumbs up for a good outcome, pellicle!
                              Bicuspid Aortic Valve discovered February 2015 at St Thomas' Hospital, London. Moderate stenosis. A comfy chair in the Waiting Room.

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