G
Guest
I'm new to this forum. Not really sure what category to place this post. This is not a happy post. I'm struggling to find out why BAV occurs. Is it a connective tissue disorder? Does anyone on this forum have Marfans or Elhers Danlos syndrome? I don't have a valve problem...just a heart that has been shattered in a million pieces.
My son had BAV. Undiagnosed BAV. Also note I said he "had" BAV. My son was a very healthy 33 year old young man. However he was very tall...6'3" only unusual because his dad is 5'7" and I'm 5'6". So makes me wonder if he possibly had Marfans.
My son never had a murmur. His last chest xray was in 2013 which was fine, he never had an echo done, there never was a reason for one.. He never had any symptoms of any cardiac issues. However, on Oct. 11, 2016 he was helping his father water the plants in the backyard and suddenly collapsed without warning and died...immediately. It took the Medical Examiner 15 weeks to finally tell us his cause of death. He died from Cardiac Arrest secondary to massive hemopericardium secondary to Aortic dissection secondary to Congenital Bicuspid Aortic Valve. My son never had any symptoms. No pain, no shortness of breath, no fatigue...nothing. Just fine one minute and dead the next. Needless to say, his father and I are devastated with grief and in shock. To make matters worse, we lost our only other child in an accident his senior year in high school.
The upsetting irony in this is I'm a Critical care Cardiac RN that works in the electrophysiology cath lab.
My son had BAV. Undiagnosed BAV. Also note I said he "had" BAV. My son was a very healthy 33 year old young man. However he was very tall...6'3" only unusual because his dad is 5'7" and I'm 5'6". So makes me wonder if he possibly had Marfans.
My son never had a murmur. His last chest xray was in 2013 which was fine, he never had an echo done, there never was a reason for one.. He never had any symptoms of any cardiac issues. However, on Oct. 11, 2016 he was helping his father water the plants in the backyard and suddenly collapsed without warning and died...immediately. It took the Medical Examiner 15 weeks to finally tell us his cause of death. He died from Cardiac Arrest secondary to massive hemopericardium secondary to Aortic dissection secondary to Congenital Bicuspid Aortic Valve. My son never had any symptoms. No pain, no shortness of breath, no fatigue...nothing. Just fine one minute and dead the next. Needless to say, his father and I are devastated with grief and in shock. To make matters worse, we lost our only other child in an accident his senior year in high school.
The upsetting irony in this is I'm a Critical care Cardiac RN that works in the electrophysiology cath lab.